4th European Symposium on Rare Anaemias

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Final Programme

Friday 18th November 2011

11:00-12:00 PRESS CONFERENCE

Saturday 19th November 2011

8:00-12:00 REGISTRATION
12:00-13:00 OPENING CEREMONY
WELCOME MESSAGES TOB I. Ivanov
BULGARIAN SOCIETY OF CLINICAL AND TRANSFUSION HAEMATOLOGY J. Raynov
TIF A. Eleftheriou
ENERCA J. L. Vives Corrons
BULGARIAN OFFICIAL REPRESENTATIVE TBD
EUROPEAN COMMISSION - RARE DISEASES J. Waligora
13:30-14:30 PLENARY SESSION I
EUROPEAN ACTIONS FOR HAEMOGLOBINOPATHIES
Chairs: M. Angastiniotis, R. Stefanov
Epidemiology and prevention of haemoglobunopathies in Europe B. Gulbis
European policies contributing to health reforms A. Eleftheriou
Cross barrier health: legal and ethical analysis performed by ENERCA C. Romeo
European educational resources on rare anaemias: the role of ENERCA P. Aguilar-Martinez
14:30-15:00 COFFEE BREAK
15:00-17:00 PLENARY SESSION II
CLINICAL MANAGEMENT OF THALASSAEMIA SYNDROMES. MULTIDISCIPLINARY CARE
Chairs: D. Loukopoulos, D. Konstantinov
Thalassaemia major: multidisciplinary care A. Piga
Pathophysiology and management of thalassaemia intermedia M.D.Cappellini
Heart failure in thalassaemia major and intermedia A. Aessopos
Endocrine consequences of iron overload E. Voskaridou
17:00-17:30 COFFEE BREAK
17:30-19:00 INTERACTIVE WORKSHOP WITH PATIENTS
HAEMOGLOBINOPATHIES AND RARE ANAEMIAS: CURRENT SITUATION IN BULGARIA
Chairs: M. Rangelova, C. Soterilis
Steps needed to move forward in Bulgaria. A professional point of view V. Kaleva
Steps needed to move forward in Bulgaria. A public health point of view R. Stefanov
Steps needed to move forward in Bulgaria. A patient point of view I. Ivanov
Expert patients' programme C. Soterilis
20:00 GALA DINNER

Sunday 20th November 2011

9:00-10:30 PLENARY SESSION III
RARE ANAEMIAS NOT DUE TO HAEMOGLOBINOPATHIES
Chairs: H. Heimpel, J. Raynov
Congenital defects of iron metabolism. A new diagnostic challenge C. Camaschella
Congenital dyserythropoietic anaemias (CDA). Current situation in Europe H. Heimpel
Hereditary hemolytic anaemias: membranopathies and enzyme defects R. van Wijk
Iron chelation in myelodisplastic syndromes G. Mihailov
10:30-12:00 PLENARY SESSION IV
ALTERNATIVE MANAGEMENT OF SEVERE HAEMOGLOBINOPATHIES AND OTHER RARE ANAEMIAS
Chair: D. Loukopoulos, D. Konstantinov
Recent advances in the management of Paroxystic nocturnal haemoglobinuria A. Hill
Clinical management of sickle-cell anaemia in children M. Montalembert
Bone marrow transplantation. Current situation D. Pagliara
Developing new therapies for thalassaemia and HbS disease D. Loukopoulos
12:00-12:30 CLOSING SESSION
TOB D. Slavev
TIF A. Eleftheriou
ENERCA J. L. Vives Corrons

 



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