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Supported by:
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Dear Ladies and Gentlemen, The Symposium will focus on the following topics: - Epidemiology and prevention of haemoglobinopathies - European policies contributing to health reforms - Cross barrier health: legal and ethical analysis performed by ENERCA - European educational resources on rare anaemias: the role of ENERCA - Thalassaemia major: multi-disciplinary care - Pathophysiology and management of thalassaemia intermedia - Hearth failure in thalassaemia major and intermedia - Endocrine and bone disease in thalassaemia syndromes - Steps needed to move forward in Bulgaria - Expert Patients' Programme - Congenital defects of iron metabolism. A new diagnostic challenge - Congenital dyserythropoietic anaemias (CDA). Current situation in Europe - Hereditary hemolytic anaemias: Membranopathies and enzyme defects - Iron chelation in myelodysplastic syndromes - Recent advances in the management of Paroxystic Nocturnal Haemoglobinuria (HPN) - Clinical management of sickle-cell anaemia in children - Bone marrow transplantation. Current situation - Developing new therapies for thalassaemia and HbS disease
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